The Health of Sexual Minorities
Edited by
Ilan H. Meyer, PhD, and
Mary E. Northridge, PhD, MPH
Mailman School of Public Health, Columbia University New York, New York, USA
The Health of
Sexual Minorities
Public Health Perspectives on Lesbian, Gay, Bisexual
and Transgender Populations
Ilan H. Meyer, PhD
Mary E. Northridge, PhD, MPH Department of Sociomedical Sciences Mailman School of Public Health Columbia University
New York, NY 10032 USA
Library of Congress Control Number: 2005939066
ISBN-10: 0-387-28871-6 e-ISBN-10: 0-387-31334-6 ISBN-13: 978-0-387-28871-0 e-ISBN-13: 978-0-387-31334-4 Printed on acid-free paper.
Portions of Chapter 10 are adapted from Meyer I.H. Prejudice, social stress, and mental health in lesbian, gay, and bisexual populations: conceptual issues and research evidence.
Psychol. Bull. 2003;129:674–697. Copyright © 2003 by the American Psychological Associ- ation. Adapted with permission.
Chapter 14 is adapted from Sell, R.L. Defining and measuring sexual orientation: a review. Archives of Sexual Behavior 1997;26:643–658.
© 2007 Springer Science+Business Media, LLC
All rights reserved. This work may not be translated or copied in whole or in part without the written permission of the publisher (Springer Science+Business Media, LLC, 233 Spring Street, New York, NY 10013, USA), except for brief excerpts in connection with reviews or scholarly analysis. Use in connection with any form of information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed is forbidden.
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Our collaboration on the editing of this book revives an earlier joint effort. In June 2001, we teamed up on the first issue of the American Journal of Public Health, devoted to lesbian, gay, bisexual, and trans- gender (LGBT) health (Northridge, 2001). Five years later, we reunited to conceptualize, coordinate, and oversee the compilation of this volume on the health of sexual minorities. In both the special issues and this volume, we sought a public health perspective that was broad enough to encompass the diverse populations and communities that comprise LGBT people, yet recognized the similarities in the experi- ences they share across cultures and locales—often related to stigma, discrimination, rejection, and violence but also resilience and resistance (Meyer, 2001). An overarching goal for this book is that careful treat- ment afforded to issues such as the impact of prejudice on the health of LGBT people may thoughtfully inform research and practice on other stigmatized groups and thereby help advance civil society.
The Institute of Medicine (1988) defined the mission of public health as fulfilling society’s interest in ensuring conditions in which people can be healthy. When conceptualizing this book, we invoked this broad definition of public health to mean, quite literally, the health of the public. How are we to advance conditions in which LGBT people can be healthy? To seek answers, we called on leading researchers who are conducting formative and applied research on LGBT health for their contributions derived from empirical studies and critical analysis in the form of peer-reviewed chapters. The result is this comprehensive and rigorous text.
Conceptual Approach to Editing This Volume
Our aim from the outset when commissioning chapters was to be inclu- sive but not exhaustive. That is, we did not aim for an encyclopedic book that covers all the areas of interest to LGBT populations. Rather, we aimed for a book that would rely on the best available thought on issues of concern to LGBT health. We sought a cross-disciplinary approach. Anthropology, biology, law, medicine, psychology, and
Preface
sociology are among the disciplines represented in this volume in addi- tion to public health. They are interwoven in interdisciplinary and intersectional works that are at the forefront of formative and applied LGBT public health research today. In addition, we invoked an eco- logical, multilevel approach by ensuring that structural determinants of LGBT health as well as individual-level specific health concerns of sexual minorities were covered.
When choosing chapter contributors and editing the chapters, we did not impose an editorial ideology other than what is described above and implied in the organization of this book. That is, we did not seek uniformity among authors in definitions of the populations of interest, the approaches they have taken to investigate these popula- tions, or the types of solutions sought. Rather, we allowed—indeed aimed for—the book to reflect current ideologic and conceptual con- troversies and debates at the cost of introducing incongruities among chapters. Thus, a reading of different chapters may give a better appre- ciation of the current state of LGBT public health research than would any single chapter.
We also sought to represent the concerns of various groups among LGBT populations—but not by paying lip service to representation at the expense of significant content. Rather, we sought areas of strong research in various specific populations (e.g., American Indians, Latinos, women, transgender individuals) with the expectation that conceptual work and certain findings from such works would be trans- ferable across populations. Finally, although this text is based in the United States, we provoked inquiry into global health issues because they provide an important perspective on LGBT health relevant both to U.S. and global populations.
Tour of the Book
Some chapters of this book are largely theoretical, others synthesize empirical research, and still others are especially hands-on. Each chapter in this volume may be read independently and understood without reference to the rest of the book. A real advantage of this text, however, is the interchange among chapters. We deliberately included different perspectives on the core topics presented. Together, their purpose is to inform readers committed to understanding and address- ing social disparities in health for LGBT populations.
Careful readers will discern that, despite broad areas of agreement, contributors differ with regard to the definition of populations of inter- est, research methodologies employed, and health concerns targeted.
Rather than censor points of view, we championed a more provocative, comprehensive, and in-depth understanding of the central themes deliberated within the text toward evolving the field of LGBT health.
We urge the reader to expand her/his scope when searching for insights in this book by exploring chapters even if their relevance to a specific population or a narrow public health question of interest is not superficially apparent. To gain the most from this volume, we believe vi Preface
it is advantageous to compare and contrast chapters within and across sections.
Although this volume was not intended to be read in order from cover to cover, the sequence and organization of its parts were pur- poseful, moving from overarching issues including conceptual and definitional frameworks; legal, social, and cultural perspectives and methodologic approaches; through specific health issues among LGBT populations; and concluding with an examination of health systems and institutions through which LGBT health is (or is not) addressed.
First, “Who Are LGBT Individuals?” By examining populations of interest, the chapters included in this part wrestle with topics such as definitions of identity; intersections across sexual, race/ethnicity, and gender identities; sexual development across the life course; and social and biologic constructions of sexuality. The following part, “LGBT Health and the State,” takes on legal, ethical, and political dilemmas as well as opportunities for policy, research, and advocacy on sexual minorities. Next, the part entitled “Prejudice and Pride in Health”
investigates the relations between societal structures and individual health, including the impact of structural violence, stigma, prejudice, and discrimination on the health of LGBT people.
Part IV, “Research Methodologies,” sets about honing the processes and means for understanding and addressing disparities in LGBT health. It is incumbent on researchers to ensure that methodologic refinements and exquisite sensitivity are employed when bringing LGBT issues into public health focus. The chapters in this part cover a variety of methodologic issues that require special attention in studies of LGBT populations, including definitions, measurement, and sam- pling as well as quantitative, qualitative, and community-based par- ticipatory research approaches.
Rather than try to cover the entire spectrum of health needs, we elected to include a diversity of health issues, with particular attention to areas that have not received much attention in books and compila- tions to date. In the part entitled “Health Concerns,” we included the following three categories of LGBT issues: (1) areas in which LGBT people are at increased risk for disease because of unique exposures (e.g., use of hormones by trans-people undergoing sex change proce- dures); (2) areas in which LGBT people have a high prevalence of expo- sure and/or disease that are not caused by unique exposures (e.g., methamphetamine use and risk of HIV infection among gay men); and (3) areas in which LGBT people are not at increased risk for disease but that nevertheless require specialized, culturally appropriate approaches (e.g., general health concerns of lesbian and bisexual women, including cancer prevention and treatment).
Finally, no public health text would be complete absent a look at
“Healthcare Systems and Services.” The final part of this book accord- ingly covers the issues of accessing and ensuring respectful health care for LGBT groups that have traditionally experienced the greatest bar- riers in U.S. systems: racial/ethnic minorities, transgender people, and youths. We end with an inspiring chapter on Fenway Community Health, a model of integrated community-based LGBT care, education,
Preface vii
and research that serves as a beacon for other locales, both within the United States and abroad.
Areas and Topics Not Included in This Book
Despite the breadth of this book, there are many areas that it does not cover. These areas can be divided into two general types: The first includes work we omitted because there are many other resources to which the reader can turn. In this, we include HIV/AIDS and psycho- logical/mental health issues. HIV/AIDS has been a major, and pre- dominant, area of investigation in gay men’s health research. Many books have been published to provide the reader good reviews of various areas of research within public health work on HIV/AIDS.
These resources include books that provide comprehensive coverage of HIV/AIDS and sexually transmitted diseases (STDs) (e.g., Holmes, 1999; Emini, 2002) as well as books that address specific aspects of public health, such as HIV prevention (Peterson & DiClemente, 2000) and specific issues affecting HIV-positive and HIV-negative gay and bisexual men (Halkitis et al., 2005; Kalichman, 2005). Similarly, the area of mental health has been the topic of many books that provide an excellent discussion of psychological development across the life-span and mental health problems related to LGB populations (D’Augelli &
Patterson, 1996, 2001; Garnets & Kimmel, 2002; Omoto & Kurtzman, 2006).
The second area of interest excluded from this volume includes many emerging areas. We omitted them because we assessed that based on the existing research we could not commission reviews that were sufficiently comprehensive. To pursue such areas, the reader would be better served by searching scientific journals that can provide more timely coverage of emerging research areas. Such areas include topics that have not been fully developed in public health work to date. For example, the discussion of family levels of influence within the conceptual model that guided the organization of this book. Many important issues face LGBT individuals as they form families. Such a chapter might have covered issues related to conception, adoption, child rearing, cohabitation, and marriage among others. Notwith- standing notable works describing anthropologic and psychological perspectives on LGB families (Weston, 1991; Patterson & D’Augelli, 1998), public health research in this area is still forming, and links to health issues have not yet been carefully explicated, evaluated, and published in the peer-reviewed literature. The need for such work is particularly heightened as debate is growing on access for LGBT individuals to civil marriage and its public health implications (Herdt
& Kertzner, 2006). There are also specific health concerns that have not received sufficient research attention (Dean et al., 2000)—for example, gay men may be at risk for anal cancer unrelated to HIV/AIDS—but the lack of research on such topics make them unsuitable for coverage in a book chapter.
viii Preface
References
D’Augelli, A.R., and Patterson, C.J. (1996) Lesbian, gay, and bisexual identities over the lifespan: psychological perspectives. Oxford University Press, New York.
D’Augelli, A.R., and Patterson, C.J. (2001) Lesbian, gay, and bisexual identities and youth: psychological perspectives. Oxford University Press, New York.
Dean, L., Meyer, I.H., Robinson, K., Sell, R.L., Sember, R., Silenzio, V.M.B., Bowen, D.J., Bradford, J., Rothblum, E., Scout, White, J., Dunn, P., Lawrence, A., Wolfe, D., and Xavier, J. (2000) Lesbian, gay, bisexual, and transgender health: findings and concerns. Journal of the Gay and Lesbian Medical Associa- tion 4: 102–151.
Emini, E. (2002) The human immunodeficiency virus: biology, immunology, and therapy. Princeton University Press, Princeton, NJ.
Garnets, L., and Kimmel, D. (2002) Psychological perspectives on lesbian, gay, and bisexual experiences. Columbia University Press, New York.
Halkitis, P.N., Gomez, C.A., and Wolitski, R.J. (2005) HIV+ sex: the psychosocial and interpersonal dynamics of HIV-seropositive gay and bisexual men’s relation- ships. American Psychological Association, Washington, DC.
Herdt, G., and Kertzner, R. (2006) I do, but I can’t: the impact of marriage denial on the mental health and sexual citizenship of lesbians and gay men in the United States. Sexuality Research & Social Policy 3: 33–49.
Holmes, K. (1999) Sexually transmitted diseases, 3rd ed. McGraw-Hill, New York.
Institute of Medicine. (1988) The future of public health. National Academy Press, Washington, DC.
Kalichman, S.C. (2005) Positive prevention: reducing HIV transmission among people living with HIV/AIDS. Springer, New York.
Meyer, I.H. (2001) Why lesbian, gay, bisexual, and transgender public health?
American Journal of Public Health 91: 856–859.
Northridge, M.E. (2001) Editor’s note: advancing lesbian, gay, bisexual, and transgender health. American Journal of Public Health 91: 855–856.
Omoto, A.M., and Kurtzman, H.S. (2006) Sexual orientation and mental health:
examining identity and development in lesbian, gay, and bisexual people. American Psychological Association, Washington, DC.
Patterson, C.J., and D’Augelli, A.R. (1998) Lesbian, gay, and bisexual identities in families: psychological perspectives. Oxford University Press, New York.
Peterson, J.L., and DiClemente, R.J. (2000) Handbook of HIV prevention. Springer, New York.
Weston, K. (1991) Families we choose. Columbia University Press, New York.
New York, New York, USA Ilan H. Meyer
Mary E. Northridge
Preface ix
As we embarked on this project, we relied on established, busy researchers and public health professionals who have dedicated their work to LGBT health issues. The unanimous endorsement of this undertaking among the many researchers we approached is a remark- able testament to the devotion of contemporary public health scientists and scholars to LGBT health, to one another, and to collaborative undertakings. We thank the authors of the chapters for their dedication and trust. We also thank the following individuals for providing invaluable advice at various stages and various aspects of the book:
Gabriel Galindo, Michael Gross, Dawn Harbatkin, Linwood Lewis, John Peterson, Lauren Porsch, Randall Sell, and Donna Shelley. Finally, we thank Bill Tucker, our editor at Springer, for believing in this project and for his continued support and help in seeing this project to fruition.
We hope that this book helps encourage researchers and public health professionals to direct their attention to LGBT health. Despite the formidable challenges ahead, the future looks bright for LGBT public health. We have come too far to turn back, and we will not. The lives and welfare of too many of us hang in the balance.
New York, New York, USA Ilan H. Meyer
Mary E. Northridge
Acknowledgments
Preface . . . . v Acknowledgments . . . . xi Contributors . . . . xvii Part I Who Are LGBT Individuals?
Chapter 1
Shifting Sands or Solid Foundation? Lesbian, Gay, Bisexual,
and Transgender Identity Formation . . . . 3 Michele J. Eliason and Robert Schope
Chapter 2
Development of Same-Sex Attracted Youth . . . . 27 Ritch C. Savin-Williams and Kenneth M. Cohen
Chapter 3
Developmental Issues in Lesbian and Gay Adulthood . . . . 48 Robert M. Kertzner
Chapter 4
Biology and Sexual Minority Status . . . . 65 William Byne
Part II LGBT Health and the State Chapter 5
The Importance of Being Perverse: Troubling Law, Identities,
Health and Rights in Search of Global Justice . . . . 93 Stefano Fabeni and Alice M. Miller
Chapter 6
Ethical, Legal, Social, and Political Implications of
Scientific Research on Sexual Orientation . . . . 130 Edward Stein
Chapter 7
Targeting the State: Risks, Benefits, and Strategic Dilemmas of Recent LGBT Health Advocacy . . . . 149 Steven Epstein
Contents
Part III Prejudice and Pride in Health Chapter 8
Sexual Stigma: Putting Sexual Minority Health Issues
in Context . . . . 171 Gregory M. Herek, Regina Chopp, and Darryl Strohl
Chapter 9
Globalization, Structural Violence, and LGBT Health:
A Cross-Cultural Perspective . . . . 209 Mark B. Padilla, Ernesto Vásquez del Aguila, and Richard G. Parker Chapter 10
Prejudice and Discrimination as Social Stressors . . . . 242 Ilan H. Meyer
Chapter 11
Determinants of Health Among Two-Spirit American Indians
and Alaska Natives . . . . 268 Karen C. Fieland, Karina L. Walters, and Jane M. Simoni
Chapter 12
“I Don’t Fit Anywhere”: How Race and Sexuality Shape
Latino Gay and Bisexual Men’s Health . . . . 301 Jesus Ramirez-Valles
Chapter 13
Black LGB Health and Well-Being . . . . 320 Juan Battle and Martha Crum
Part IV Research Methodologies Chapter 14
Defining and Measuring Sexual Orientation
for Research . . . . 355 Randal L. Sell
Chapter 15
Sampling in Surveys of Lesbian, Gay, and
Bisexual People . . . . 375 Diane Binson, Johnny Blair, David M. Huebner, and
William J. Woods Chapter 16
Researching Gay Men’s Health: The Promise of
Qualitative Methodology . . . . 419 Gary W. Dowsett
Chapter 17
From Science Fiction to Computer-Generated Technology:
Sampling Lesbian, Gay, and Bisexual Individuals . . . . 442 Esther D. Rothblum
xiv Contents
Chapter 18
Using Community-Based Participatory Research to Understand and Eliminate Social Disparities in Health for
Lesbian, Gay, Bisexual, and Transgender Populations . . . . 455 Mary E. Northridge, Brian P. McGrath, and Sam Quan Krueger
Part V Health Concerns Chapter 19
Transgender Health Concerns . . . . 473 Anne A. Lawrence
Chapter 20
Health Care of Lesbian and Bisexual Women . . . . 506 Katherine A. O’Hanlan and Christy M. Isler
Chapter 21
Cancer and Sexual Minority Women . . . . 523 Deborah J. Bowen, Ulrike Boehmer, and Marla Russo
Chapter 22
HIV/AIDS Prevention Research Among Black Men Who Have Sex with Men: Current Progress and
Future Directions . . . . 539 Gregorio A. Millett, David Malebranche, and John L. Peterson
Chapter 23
LGBT Tobacco and Alcohol Disparities . . . . 566 Gregory L. Greenwood and Elisabeth P. Gruskin
Chapter 24
Methamphetamine Use and Its Relation to HIV Risk:
Data from Latino Gay Men in San Francisco . . . . 584 Rafael M. Díaz
Part VI Healthcare Systems and Services Chapter 25
Improving Access to Health Care Among African-American, Asian and Pacific Islander, and Latino Lesbian, Gay, and
Bisexual Populations . . . . 607 Partrick A. Wilson and Hirokazu Yoshikawa
Chapter 26
Public Health and Trans-People: Barriers to Care and
Strategies to Improve Treatment . . . . 638 Emilia Lombardi
Chapter 27
HIV Prevention and Care for Gay, Lesbian, Bisexual, and Transgender Youths: “Best Practices” from
Existing Programs and Policies . . . . 653 Joyce Hunter and Jan Baer
Contents xv
Chapter 28
Fenway Community Health’s Model of Integrated, Community-Based LGBT Care, Education,
and Research . . . . 693 Kenneth H. Mayer, Matthew J. Mimiaga, Rodney VanDerwarker,
Hilary Goldhammer, and Judith B. Bradford
Index . . . . 717 xvi Contents
Jan Baer, Research Foundation for Mental Hygiene, New York State Psy- chiatric Institute, New York, New York, USA
Juan Battle, Department of Sociology, The Graduate Center, City Uni- versity of New York; and Hunter College, New York, New York, USA Diane Binson, Center for AIDS Prevention Studies, University of California–San Francisco, San Francisco, California, USA
Johnny Blair, Abt Associates, Inc., Bethesda, Maryland, USA
Ulrike Boehmer, School of Public Health, Boston University, Boston, Massachusetts, USA
Deborah J. Bowen, School of Public Health and Community Medicine, University of Washington, Seattle, Washington, USA
Judith B. Bradford, School of Medicine and L. Douglas Wilder School of Government and Public Affairs, Virginia Commonwealth University, Richmond, Virginia; and The Fenway Institute, Fenway Community Health, Boston, Massachusetts, USA
William Byne, Mount Sinai School of Medicine, New York; and Bronx Veterans Affairs Medical Center, Bronx, New York, USA
Regina Chopp, Department of Psychology, University of California–
Davis, Davis, California, USA
Kenneth M. Cohen, Gannett Health Center, Cornell University, Ithaca, New York, USA
Martha Crum, Department of Sociology, The Graduate Center, City Uni- versity of New York, New York, New York, USA
Rafael M. Diaz, César E. Chávez Institute, San Francisco State Univer- sity, San Francisco, California, USA
Gary W. Dowsett, Australian Research Centre in Sex, Health and Society, La Trobe University, Melbourne, Australia
Michele J. Eliason, Institute for Health and Aging, University of California–San Francisco, San Francisco, California, USA
Steven Epstein, Department of Sociology, University of California–
San Diego, La Jolla, California, USA
Contributors
Stefano Fabeni, School of Law, Columbia University, New York, New York, USA
Karen C. Fieland, School of Social Work, University of Washington, Seattle, Washington, USA
Hilary Goldhammer, The Fenway Institute, Fenway Community Health, Boston, Massachusetts, USA
Gregory L. Greenwood, Behavioral Health Sciences, United Behavioral Health, San Francisco, California, USA
Elisabeth P. Gruskin, Kaiser Permanente, Oakland, California, USA Gregory M. Herek, Department of Psychology, University of California–
Davis, Davis, California, USA
David M. Huebner, Center for AIDS Prevention Studies, University of California–San Francisco, San Francisco, California, USA
Joyce Hunter, HIV Center for Clinical and Behavioral Studies, New York State Psychiatric Institute and Department of Psychiatry; and Department of Psychiatry, Columbia University, New York, New York, USA
Christy M. Isler, Brody School of Medicine, East Carolina University, Greenville, North Carolina, USA
Robert M. Kertzner, Department of Psychiatry, Columbia University, New York, New York, USA
Sam Quan Krueger, United Way of New York, New York, New York, USA Anne A. Lawrence, Seattle, Washington, USA
Emilia Lombardi, Graduate School of Public Health, University of Pittsburgh, Pittsburgh, Pennsylvania, USA
David Malebranche, School of Medicine, Emory University, Atlanta, Georgia, USA
Kenneth H. Mayer, Medicine and Community Health, Brown Univer- sity, Providence, Rhode Island; and The Fenway Institute, Fenway Community Health, Boston, Massachusetts, USA
Brian P. McGrath, Graduate School of Architecture, Planning and Preservation, Columbia University, New York, New York, USA Ilan H. Meyer, Mailman School of Public Health, Columbia University, New York, New York, USA
Alice M. Miller, Mailman School of Public Health, Columbia University, New York, New York, USA
Gregorio A. Millett, Centers for Disease Control and Prevention, Atlanta, Georgia, USA
Matthew J. Mimiaga, The Fenway Institute, Fenway Community Health, Boston, Massachusetts, USA
xviii Contributors
Mary E. Northridge, Mailman School of Public Health, Columbia Uni- versity, New York, New York, USA
Katherine A. O’Hanlan, Gynecologic Oncology Associates, Portola Valley, California, USA
Mark B. Padilla, Mailman School of Public Health, Columbia Univer- sity, New York, New York, USA
Richard G. Parker, Mailman School of Public Health, Columbia Univer- sity, New York, New York, USA
John L. Peterson, Department of Psychology, Georgia State University, Atlanta, Georgia, USA
Jesus Ramirez-Valles, School of Public Health, University of Illinois–
Chicago, Chicago, Illinois, USA
Esther D. Rothblum, Women’s Studies Department, San Diego State University, San Diego, California, USA
Marla Russo, School of Public Health and Community Medicine, University of Washington, Seattle, Washington, USA
Ritch C. Savin-Williams, Department of Human Development, Cornell University, Ithaca, New York, USA
Robert Schope, Department of Social Work, The University of Wisconsin Oshkosh, Oshkosh, Wisconsin, USA
Randall L. Sell, School of Public Health, Drexel University, Philadelphia, Pennsylvania, USA
Jane M. Simoni, Department of Psychology, University of Washington, Seattle, Washington, USA
Edward Stein, Benjamin N. Cardozo School of Law, New York, New York, USA
Darryl Strohl, Department of Psychology, University of California–
Davis, Davis, California, USA
Rodney VanDerwarker, The Fenway Institute, Fenway Community Health, Boston, Massachusetts, USA
Ernesto Váquez del Aguila, Mailman School of Public Health, Columbia University, New York, New York, USA
Karina L. Walters, School of Social Work, University of Washington, Seattle, Washington, USA
Patrick A. Wilson, Yale University School of Medicine, New Haven, Connecticut, USA
William J. Woods, Center for AIDS Prevention Studies, University of California–San Francisco, San Francisco, California, USA
Hirokazu Yoshikawa, Harvard Graduate School of Education, Cam- bridge, Massachusetts, USA
Contributors xix