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View of A preliminary Survey to investigate the feasibility of a digital application for physiotherapy in patients with Cystic Fibrosis.

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Smart eLab - volume 14, anno 2019

Innovation and Technology Transfer

A preliminary Survey to investigate the feasibility

of a digital application for physiotherapy in patients

with Cystic Fibrosis.

Beniamino Giacomodonato,aMatteo De Marchis,aIrene Piermarini,aPaola Leonea,

Sergio Bellaa, Vincenzina Lucidi.a

Keywords: Cystic Fibrosis, app, respiratory rehabilitation, telemedicine

Introduction: Cystic fibrosis (CF) is a multi-organ genetic disorder, but its clinical outcome involves mostly the respiratory

system. Viscous mucus secretions obstruct airways, leading to recurrent and often subsequent chronic infections. The course of the disease is marked by periodic exacerbations with decline in pulmonary function.1Adherence is generally poor and has been estimated at 50% or less for pulmonary medications.2

The purpose of this survey is to evaluate the possible use and the utility of a future digital application for respiratory rehabilita-tion in patients followed by Telemedicine-service.

Methods: 24 CF patients (age 27,04±8,13) are enrolled and then their parents (age 40,45±7,26); we asked them to answer

ten questions about for example the use of mobile-phone, the internet connection, wich app they usually use, and also if they want to receive a communication about respiratory rehabilitation.

Results: All children and their parents (100%) expressed an excellent opinion about a possible way of digital application for

physiotherapy, and they want to use it in their daily life.

Discussion: This future app for respiratory rehabilitation will be a good tool, specially to improve adherence in medical

treatment in patients with Cystic Fibrosis.

Riferimenti

1 D. M. Orenstein, G. B. Winnie, H. Altman, Cystic fibrosis: a 2002 update, The Journal of pediatrics 140 (2) (2002) 156–164. 2 L. Goldbeck, A. Fidika, M. Herle, A. L. Quittner, Psychological interventions for individuals with cystic fibrosis and their families,

Cochrane Database of Systematic Reviews (6).

aPaediatric Hospital Bambino Gesù, Rome (Italy) email: sergio.bella@opbg.net; beniamino.giacomodonato@opbg.net

Creative Commons Attribuzione - Non commerciale - Condividi allo stesso modo 4.0 Internazionale

† presentato a @ITIM 2019 - 19◦Congresso Nazionale Associazione Italiana di Telematica ed Informatica Medica 11-12 Novembre 2019, Matera/Potenza.

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