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I vantaggi per la gestione delle terapie palliative

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I vantaggi per la gestione delle cure palliative

Giampiero Porzio, Corrado Ficorella

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Integrazione Oncologia-Cure Palliative

• Position ESMO -> “ESMO Designated Centre of Integrated Oncology and Palliative Care”

• Position AIOM -> Tavolo Permanente “Continuità di Cura”

• Lavori “Early Palliative Care” -> position ASCO

Parola chiave:

Early

(3)

“Early Palliative Care”

• Migliore qualità di vita

• Miglior controllo dei sintomi (modesto, ma clinicamente apprezzabile)

• Effetto sulla sopravvivenza incerto

CochraneDatabase of Systematic Reviews

Early palliative care for adultswith advanced cancer (Review)

Haun MW, Estel S, Rücker G, Friederich HC, Villalobos M, Thomas M, Hartmann M

Haun MW, Estel S, Rücker G, Friederich HC, Villalobos M, Thomas M, Hartmann M.

Early palliative care for adults with advanced cancer.

Cochrane Database of Systematic Reviews 2017, Issue 6. Art. No.: CD011129.

DOI: 10.1002/14651858.CD011129.pub2.

www.cochranelibrary.com

Early palliat ive care for adults wit h advanced cancer (Review)

Copyright© 2017 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd.

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Oncologi vs Cure Palliative

Diminuisce l’interesse

Aumenta la dimensione del

problema

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Due survey recenti

• Caccialanza R et al “Awareness and consideration of malnutrition among oncologists: Insights from an exploratory survey”. Nutrition, 2016

Giusti R et al “Knowledge and attitude of Young Italian Medical Oncologists towards the approach and treatment of pain: no changes, despite the law”

Pain Med, 2017

5.7%

risposte totali

14.5%

risposte totali

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“Integration between oncology and oaliative care: a plan for the next decade?” Tumori, 2017

(7)

Hui D et al “Automatic referral to standardize palliative care access: an internationalDelphi survey”

Support Care Cancer, 2017 Jul 19

“Our panelists favored the combination of automatic referral to augment

clinician-based referral.”

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L’integrazione inizia all’interno delle UU.OO. di Oncologia

• “Oncology Units must provide following essential requirements: … at least one physicianm psychologist, and nurse – with documented experience in management of symptoms ...”

• The presence of a medical oncologist with experience in palliative care is encouraged in every oncology unit in order to reate an interface with palliative care services, whether they are

preset in the hospital or as erritorial services”

“Position paper of the AIOM on early palliative care in oncology practice”

Tumori, 2017

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Nostra esperienza

• Dal 2002 un team dedicato alle cure di supporto

• All’interno dell’UOC di Oncologia Medica

• Disponibilità di posti letto di degenza e di day hospital

“The Supportive Care Task Force at the University of L’Aquila: 2-years experience”

Supp Care Cancer, 2005

(10)

Nostra esperienza

• Tempestivo e ed efficace trattamento dei sintomi

• Riduzione delle terapie attive negli ultimi mesi di vita

• Uso appropriato delle risorse ospedaliere

• “Early Palliative Care”; transizione verso le cure palliative

“The Supportive Care Task Force at the University of L’Aquila: 2-years experience”

Supp Care Cancer, 2005

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Nostra esperienza

70% 30%

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“Integrating oncology and palliative home care in Italy: the experience of the “L’Aquila per la Vita” Home Care Unit”

Tumori, 2013

• Stessi oncologi in ospedale ed a domicilio

• Stessi protocolli

• Riduzione ricoveri inappropriati

• Dare risposte alle preferenze dei pazienti

• Palliative Sedation - Support Care Cancer, 2010

• Malignant Bowel Obstruction – Support Care Cancer, 2011

• BTcP - Support Care Cancer, 2013

• 50% di pazienti in trattamento CT

• 4% di ricoveri ripetuti

• 75% di decessi a domicilio

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“Integrating oncology and palliative home care in Italy: the experience of the “L’Aquila per la Vita” Home Care Unit” Tumori, 2013

• Approccio specialistico

• Ospedalizzazione domiciliare

• Coinvolgimento della famiglia

• Pazienti provenienti da un’unica U.O. di Oncologia

• Territorio con un centro urbano e molte aree remote

• Supporto del no-profit

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BOOKERANG SRL

AV CONSULTING SNC ATAENA

UOC Oncologia Fabriano

Associazione Oncologica Fabrianese

Intelligent Oncology

TeleCare

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UOC Oncologia Venezia

Associazione Volontari Assistenza Pazienti Oncologici

• Criticità: la famiglia!

• Pazienti anziani con caregiver affetto da patologie croniche

• Pazienti anziani soli

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Associazione Tumori Toscana

Provider di cure domiciliari a Firenze, Prat, Pistoia

1.500 pazienti/anno (2016)

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Associazione Tumori Toscana

• Pazienti provenienti da più UU.OO. di Oncologia

• Famiglia poco presente

• Area metropolitana

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Associazione Tumori Toscana

• Verna L et al “Immigrants accessing end of life care in Italy: the Tuscany Tumors Association experience” J Pain Symptom Manage, 2016

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Le realtà locali sono profondamente diverse l’una dall’altra

Hui D et al “Indicators of integration of oncology and palliative care programs: an international consensus” Ann Oncol, 2015

Verna L. et al “Integration between oncology and palliative care:

does one size fit all?” Ann Oncol, 2015

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“One size does not fit all”

• It would be necessary to propose goals (for example, evaluation and treatment of symptoms, continuity of care, non-abandonment at the end-of-life, etc.) rather than preset models, so that each single centre is able to develop “tailored” programs to their own resources.

• It is possible to build custom-tailored programs for each single economical, cultural and geographical situation

• When we talk about health services, “one size does not fit all”.

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Saranno direttamente proporzionali

• alle conoscenze ed alle attitudini degli Oncologi sulle Cure Palliative

• alla capacità di “personalizzare” l’organizzazione dei servizi in considerazione delle caratteristiche delle singole realtà

I vantaggi per la gestione delle cure palliative

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