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Con Ale verso l’autonomia

Il processo verso l’autonomia è uno dei temi affrontati e portati avanti con speciale dedizione dalla nostra Fondazione, e inizia proprio con la storia di Ale. Si tratta del racconto di una madre che, come psicologa, ha pensato di donare la sua esperienza realizzando un opuscolo inerente i temi dell’autonomia e della disabilità, con la preziosa collaborazione di due giovani e competenti colleghe e amiche. Ale era affetta da una grave malformazione vascolare congenita e, malgrado le sue condizioni legate ad una malattia cronica e fortemente invalidante, spiccava per le sue straordinarie capacità e per il forte senso dell’autonomia, diventando protagonista e persona attiva nel suo percorso di vita, riuscendo a semplificare gli aspetti generalmente ritenuti complicati e impossibili da affrontare. Nonostante le sue difficoltà che l’hanno vista, tra l’altro, costretta ad una sedia a rotelle, Ale ha inseguito il suo sogno, quello di diventare giornalista e autrice televisiva. Con la forza del suo

sorriso ha superato ogni difficoltà, a partire dalla scelta di vivere da sola, lontano dai suoi cari, pur di inseguire i suoi obiettivi. Ale ci ha lasciati purtroppo alla sola età di 28 anni, ma il suo esempio di autonomia continua e si concretizza con la realizzazione della guida “Verso l’autonomia possibile”. Attraverso la storia di Ale, il contributo del presente lavoro rappresenta un momento importante di condivisione e di riflessione. Con esso si vuole, inoltre, sottolineare l’importanza del ruolo della famiglia e del personale sanitario, come stimolo per la crescita di ciascun individuo in difficoltà e per il raggiungimento della massima autonomia.

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